REFUSE DEFEAT

A Resource for Young-Onset Parkinson's Disease

Home      Community      Blog       About Me      Resources      Links      PD News & Events      

**Updates to the site have been delayed due to unexpected health problems (unrelated to PD). The site is expected to return to normal updates by the middle of June. Thank you**

In other words, if a link isn't there yet or an article isn't yet written, it will be soon. Thanks!

The purpose of Refuse Defeat is two-fold. The first purpose of this site is to promote awareness of Young-Onset Parkinson's Disease. My hope is that doctors, patients, and the general public will realize that there are many out there who are ignored, misdiagnosed, or are otherwise forgotten. That they will come to understand that there is much, much more to this disease than the shaking.

The second purpose of this site is to provide support for those "suffering" with this progressive, neurological condition, and to aid "People with Parkinson's" (PWPs) in their daily lives. That means that while I long for a cure, I believe the real focus should be first to make everyday life better, and then work on the cure. This means information to make better decisions regarding care and finances, financial or other help for those who need it, as well as providing the knowledge to patients and caregivers that they are not alone in this battle.

These purposes will be met by the articles on the website, by interviews with PWPs and their caregivers (and hopefully doctors), by reviews of published books and articles, and by a listing of links and support groups available. Information will also be provided on how anyone can help Parkinson's Disease Research.


You are not alone!

    Learn more about the PD Tulip, and why having a unified symbol for our disease is so important, at http://www.pdtulip.com   

Latest site updates:
04/19/08: Site established, not yet functional. Added message board.
04/20/08: Site up and running! All top menu links working. Pages sort of fleshed out.
04/21/08: Added new links on the Links page, filled in links that weren't yet in (at least a handful of them), updated "About Me" page.
04/23/08: Added new article, "The Parkinson's Disease Diagnosis" (Incomplete as of 04/23/08)

Scheduled June Site Updates:
* Flesh out the message board more (more boards/topics, add smileys)
* Get google ads running at the bottom of certain pages
* Complete links page so all entries have valid URLs attached to them
* Begin work on resources section
* Finish "About Me" section

How to find information on this site:

Links page: A list of PD links, organized by type
Pertinent PD News and Events: 'nuff said
About Me: About the creator of Refuse Defeat
Community: Bulletin Board for PWP, caregivers, etc. (Requires registration to post)
Blog: My blog, "Young Parkinson's - My Journey"
Resources: Includes information on, and pages about:
Pregnancy and PD
Obtaining a PD diagnosis
Living with PD
Disability
Symptoms
Medications
Exercise and PD
Rock Steady Boxing!
The Genetics of Parkinson's Disease
Personal PD stories
Support Group Information
Newsletters, etc
Book Reviews

Click here for the Refuse Defeat site map (last updated 04/20/08).

 To contact the author of this site, please send email to : refusedefeat (AT) hotmail (DOT) com , or click here      

Silver Ribbon Coalition
Visit the Silver Ribbon Coalition! (Thank you to "OneLife" for the link!)

Note: The ads on Refusedefeat.com are to compensate for the fees and the time required to maintain this site (since this site is neither on a free domain nor hosting package), and are placed there by me. Please click on them if they seem interesting to you, and purchase through this site if you were going to anyway - that will help me. If the ads become offensive in their content, please let me know so I can rectify the matter with the company that I use to place ads on the site. To further support this site, please contact me about ways you can help. Thank you!


Notice: The images (e.g., photos) and some information contained on this site are property of the Refuse Defeat owners unless otherwise specified. The PD Tulip is not mine, and the other tulip clip art is from Microsoft clip art. Please do not copy this information without crediting the site and asking permission first. As well, I am not a doctor and the information contained in this site should not be viewed as such, and therefore I am not responsible if you do not properly research your actions and suffer repercussions. Thank you.